Construire un Réseau Lusophone de Biobanques et de Collections Biologiques: opportunités dans la science et contribution pour la santé mondiale
Résumé
Les biobanques et les Collections Biologiques sont des infrastructures centrales pour la recherche scientifique et l’innovation, en soutenant divers domaines scientifiques, tels que la préservation de la biodiversité, les sciences alimentaires ou la biotechnologie, et en particulier la recherche biomédicale. Ils sont une source de ressources essentielles pour l’innovation et l’application en santé mondiale, en particulier pour le développement de nouveaux biomarqueurs, thérapies et tests de diagnostic.
Dans les Pays Africains de Langue Portugaise (PALOP), plusieurs infrastructures ont déjà été mises en place et des autres institutions sont intéressées à en installer davantage. Un Réseau de Biobanques et Collections Biologiques Lusophones est en cours de promotion, qui comprend également des membres du Brésil et du Portugal visant à développer le partage d’expériences entre des infrastructures avec différents niveaux de développement, stratégies et différents programmes, en renforçant les opportunités et les bénéfices qu’apporte l’activité en réseau.##plugins.generic.usageStats.downloads##
Références
Kinkorová J. Education for future biobankers - The state-of-the-art and outlook. EPMA J. 2021 Mar;12(1):15–25.
Park A. 10 Ideas Changing the World Right Now: Biobanks. TIME Magazine. 2009 Mar 12;(173). [Consultado em 20 de abril de 2024]. Disponível em: https://content.time.com/time/specials/packages/article/0,28804,1884779_1884782_1884766,00.html
Committee on Biological Collections: Their Past, Present, and Future Contributions and Options for Sustaining Them, Board on Life Sciences, Division on Earth and Life Studies, National Academies of Sciences, Engineering, and Medicine. Biological Collections: Ensuring Critical Research and Education for the 21st Century.Washington, D.C.: National Academies Press; 2020 [Consultado em 21 de março de 2024]. Disponível em: https://www.nap.edu/catalog/25592
Parodi B. Biobanks: A Definition. In: Mascalzoni, D. (eds) Ethics, Law and Governance of Biobanking.The International Library of Ethics, Law andTechnology. 2015 vol 14. Springer, Dordrecht.
ISO 20387:2018. Biotechnology—Biobanking—General Requirements for Biobanking. [Internet]. [Consultado em 17 de março de 2024]. Disponível em: https://www.iso.org/standard/67888.html
Müller H, Dagher G, Loibner M, Stumptner C, Kungl P, Zatloukal K. Biobanks for life sciences and personalized medicine: importance of standardization, biosafety, biosecurity, and data management. Curr Opin Biotechnol. 2020 Oct;65:45–51.
Snapes E, Astrin JJ, Krüger NB, Grossman GH, Hendrickson E, Miller N, Seiler C. Updating International Society for Biological and Environmental Repositories Best Practices, Fifth Edition: A New Process for Relevance in an Evolving Landscape. 2023.537546. [Consultado em 27 de junho de 2024]. Disponível em: https://www.isber.org/page/BPR. Biopreservation and Biobanking.
Ezzat S, Biga R, Kozlakidis Z. Biobanking in LMIC settings for infectious diseases: Challenges and enablers. Biosaf Health. 2022 Oct;4(5):290–2.
Medina PB, Kealy J, Kozlakidis Z. Integrating research infrastructures into infectious diseases surveillance operations: Focus on biobanks. Biosaf Health. 2022 Dec;4(6):410–3.
Vaught J. Biobanking During the COVID-19 Pandemic. Biopreservation Biobanking. 2020 Jun;18(3):153–4.
Riso B. O estatuto social do biobanco de pesquisa clínica. CIES e-Working Paper N.o 202/2016; 2016. [Consultado em 20 de abril de 2024]. Disponível em: https://repositorio.iscte-iul.pt/bitstream/10071/11078/1/CIES-WP202_ Riso.pdf
Park O, Cho SY, Shin SY, Park JS, Kim JW, Han BG. A Strategic Plan for the Second Phase (2013–2015) of the Korea Biobank Project. Osong Public Health Res Perspect. 2013 Apr;4(2):107–16.
Lee A, Seo J, Park S, Cho Y, Kim G, Li J, et al. Type 2 diabetes and its genetic susceptibility are associated with increased severity and mortality of COVID-19 in UK Biobank. Commun Biol. 2024 Jan;7(1):122.
Halldorsson BV, Eggertsson HP, Moore KHS, Hauswedell H, Eiriksson O, Ulfarsson MO, et al. The sequences of 150,119 genomes in the UK Biobank. Nature. 2022 Jul;607(7920):732–40.
Kinkorová J. Biobanks in the era of personalized medicine: objectives, challenges, and innovation: Overview. EPMA J. 2015 Dec;7(1):4.
Riso B. “Not Storing the Samples It’s Certainly Not a Good Service for Patients”: Constructing the Biobank as a Health Place. Societies. 2022 Aug;12(4):113.
Holub P, Swertz M, Reihs R,Van Enckevort D, Müller H, Litton JE. BBMRIERIC Directory: 515 Biobanks with Over 60 Million Biological Samples. Biopreservation Biobanking. 2016 Dec;14(6):559–62.
MIRRI. Microbial Resources for a green, healthy and sustainable future - Strategic Research & Innovation Agenda 2021 - 2030. MIRRI; 2021. [Consultado em 18 de março de 2024]. Disponível em: https://www.mirri.org/wp-content/uploads/2021/03/MIRRI_SRIA2021-30_Web-version_20210319.pdf
Sgaier SK, Jha P, Mony P, Kurpad A, Lakshmi V, Kumar R, et al. Biobanks in Developing Countries: Needs and Feasibility. Science. 2007 Nov;318(5853):1074–5.
Akinyemi RO, Akinwande K, Diala S, Adeleye O, Ajose A, Issa K, et al. Biobanking in a Challenging African Environment: Unique Experience from the SIREN Project. Biopreservation Biobanking. 2018 Jun;16(3):217–32.
Christoffels A, Abayomi A. Careful governance of African biobanks.The Lancet. 2020 Jan;395(10217):29–30.
Peeling R, Fongwen N, Boeras D, Sall A, Nkengasong J, Kebede Y, et al. Establishment of a Biobanking Network as a Sustainable Mechanism to Accelerate Development and Evaluation of Diagnostic Tests in Africa. Africa Centres for Disease Control and Prevention (Africa CDC); 2023. [Consultado em 19 de março de 2024]. Disponível em: https://africacdc.org/download/establishment-of-a-biobanking-network-as-a-sustainable-mechanism-to-accelerate-development-and-evaluation-of-diagnostic-tests-in-africa/
Ramalho IC, Maranduba CMDC. Biobanks: a basis for quality research. Einstein São Paulo. 2019 Dec;18:eCE5266.
Da Silva M, Stefanoff G, do Nascimento C, de Souza R.The new Fiocruz COVID-19 biobank in the fight against the pandemic.World Federation for Culture Collections Newsletter (No. 58); 2021. [Consultado em 20 de abril de 2024]. Disponível em: https://wfcc.info/static/pdf/WFCC-NL-OCTOBER-2021-FC.pdf
Da Silva M, Chame M, Moratelli R. Fiocruz Biological Collections: strengthening Brazil’s biodiversity knowledge and scientific applications opportunities. Biodivers Data J. 2020 Jun;8:e53607.
Riso B. Os Portugueses e os biobancos: um primeiro mapeamento de uma realidade emergente. In: Biobancos, Investigação e Saúde Pública: Promessas e Desafios. Silva JP&Barros H (eds). Instituto de Saúde Pública da Universidade do Porto; 2020. p. 35–41.
Chen H, Pang T. A call for global governance of biobanks. Bull World Health Organ. 2015 Feb;93(2):113–7.
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